The Abel Foundation was created to aid the sufferers of Mitochondrial Disease and help their families deal with this life threatening disease. Currently there is no cure.
Our aim is to create a 24 hour support network via phone, email and text and be on hand to help people when they need support or even just someone to listen and can understand what they go through on a day to day basis.
As we grow we aspire to provide onsite counsellors for hospitals and financial aid to those needing equipment and respite.
Abel Noakes was the inspiration for founding the charity which is named after him. Born in September 2014, he has been battling this disease all of his young life.
Abel’s parents understand the challenges parents and carers face and set up The Abel Foundation to provide assistance to those dealing with this devastating illness.
When Abel was born his blood was showing very high acid levels. He was 3 weeks old before his parents Tony and Claire Noakes could take him home and were left in the dark as to what had caused the problem.
5 months later things started going wrong. After lots of stressful tests, Tony, Claire and baby Abel returned home and had to wait for results around 8 weeks. "The reason for wanting to help others is the appalling treatment we received when our son, Abel, was diagnosed after waiting months to find out what was going on" said Tony. Finally they were told that Abel had something called Mitochondrial disease. Tony and Claire were told very little by the hospital as at the time the doctors knew little about the disease. Tony and Claire felt like they were left in complete darkness and all they could do was internet research.
Abel has got Leighs Mitochondrial Disease with Narp Mutation. There is no cure - just a lot of vitamins can be administered to support him.
Abel had just turned 9 months old when he got home. Frustrated with the lack of support and knowledge Tony and Claire set up The Abel Foundation in 2015 to help provide support for sufferers and the families of Mitochondrial Disease.